tag:blogger.com,1999:blog-5520636576141846708.post4765273906928710562..comments2024-01-04T02:50:43.653-08:00Comments on RHETT'S JOURNEY: Home!!!!!!Unknownnoreply@blogger.comBlogger21125tag:blogger.com,1999:blog-5520636576141846708.post-72066129272614591992008-04-13T15:43:00.000-07:002008-04-13T15:43:00.000-07:00Ah yes, dysphagia. That'll do it. I'm glad you g...Ah yes, dysphagia. That'll do it. I'm glad you got that cleared up! Go Rhett! Swallowing goes to the tummy, not the lungs! Remember this!little.birdyhttps://www.blogger.com/profile/07156310917613899680noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-87151831944320765382008-04-13T15:30:00.000-07:002008-04-13T15:30:00.000-07:00I just found your site. Rhett is such a cutie! H...I just found your site. Rhett is such a cutie! He's in my thoughts and prayers.Maryhttps://www.blogger.com/profile/13467859467559900843noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-52070560221620587272008-04-13T14:22:00.000-07:002008-04-13T14:22:00.000-07:00I found your blog rather randomly but it really ca...I found your blog rather randomly but it really captured my heart. Rhett is only a few months younger than my son and I have just fallen for that smile. I think about you and your family every day and pray God's love, peace and health for all of you every day.<BR/><BR/>AnnAnnhttps://www.blogger.com/profile/06795203327202286394noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-61362549185316230792008-04-12T21:55:00.000-07:002008-04-12T21:55:00.000-07:00Happy to hear you are home now and have some answe...Happy to hear you are home now and have some answers! I pray for Rhett often. *hugs*Tweejyhttps://www.blogger.com/profile/03276837460109331526noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-91395755963775076632008-04-12T19:24:00.000-07:002008-04-12T19:24:00.000-07:00Thank goodness you are home now and hopefully not ...Thank goodness you are home now and hopefully not going back any time soon. I am even more happy they found out what is going on. There is so much going on with Rhett it is overwhelming. You guys are amazing. How are all the kids handling everything? Hang in there. Hugs and prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-73329053066545730802008-04-12T18:44:00.000-07:002008-04-12T18:44:00.000-07:00oh, so happy that you are home! and that you have ...oh, so happy that you are home! and that you have some answers! I'm hoping for a smiley Rhett picture tomorrow...until then, I hope you are BOTH getting lots of sleep in your comfy beds..<BR/>Debbie and BinnyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-11918181727496869792008-04-12T15:26:00.000-07:002008-04-12T15:26:00.000-07:00Elainah and Rhett should be best friends. She has ...Elainah and Rhett should be best friends. She has silent aspiration too. We thicken. What's worse...NO insurance will cover that cost. Bleck.<BR/><BR/>hugs to you and Rhett...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-78008041148300741382008-04-12T11:35:00.000-07:002008-04-12T11:35:00.000-07:00Yah! Some answers!! I am so glad you are home an...Yah! Some answers!! I am so glad you are home and you don't have to do quite as much worrying.Melaniehttps://www.blogger.com/profile/04597514092059155556noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-85969779886383185982008-04-12T10:33:00.000-07:002008-04-12T10:33:00.000-07:00I'm so happy you guys are home! What a nightmare,...I'm so happy you guys are home! What a nightmare, and seriously, I'm feeling you with the 12am and 4am vitals!!!! ACK!!!!Careyhttps://www.blogger.com/profile/01399597037132075637noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-73864123878819940842008-04-12T09:59:00.000-07:002008-04-12T09:59:00.000-07:00Glad to hear Rhett is doing better. If you get a ...Glad to hear Rhett is doing better. If you get a second, you should post which Elmo videos he already has. We may have some to pass along!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-73676745500329689592008-04-12T09:38:00.000-07:002008-04-12T09:38:00.000-07:00SOOOO happy that you have answers and that he's fe...SOOOO happy that you have answers and that he's feeling better. We love you guys!!!!<BR/><BR/>Melissa, Bill, Garrett etc.Melissahttps://www.blogger.com/profile/01120574212451955232noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-46298317310333359512008-04-12T07:48:00.000-07:002008-04-12T07:48:00.000-07:00I'm so happy that you guys made it home and finall...I'm so happy that you guys made it home and finally have some answers, I've been praying every night for Rhett to feel better. This seriously made me happy :)StephthefutrRxDrhttps://www.blogger.com/profile/08755796272483069705noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-49292846108886078742008-04-12T07:26:00.000-07:002008-04-12T07:26:00.000-07:00I'm so glad you are home and that you got some ans...I'm so glad you are home and that you got some answers! I hope the adjustments you make help him - glad to hear he started to feel better in the hospital.Melissa @ Banana Migrainehttps://www.blogger.com/profile/14951062053478091089noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-62730159484094223672008-04-12T06:28:00.000-07:002008-04-12T06:28:00.000-07:00Oh Thank God you are home with some answers! How f...Oh Thank God you are home with some answers! How frightening to learn what was happening but I'm glad they did figure it out. Poor little man! <BR/><BR/>Continued prayers and wishes for strength and better health in the months to come. Hugs to you all.Kitty, Nathanael's Momhttps://www.blogger.com/profile/00662525455583228320noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-28524462425314427392008-04-12T05:34:00.000-07:002008-04-12T05:34:00.000-07:00Yay for home, your own bed...and ANSWERS! So glad...Yay for home, your own bed...and ANSWERS! So glad they found the cause.<BR/><BR/>Hey, on the ELMO vis, email me offline (niksmother at gmail dot com) nd tell me which ones you have already. We have a bunch of them that Nik doesn't really watch. I'd love to share them w/Rhett!Niksmomhttps://www.blogger.com/profile/14715465327343655483noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-25565010715425734072008-04-12T03:58:00.000-07:002008-04-12T03:58:00.000-07:00Tristan had this problem for the past 4 years. If ...Tristan had this problem for the past 4 years. If he drinks from a cup/straw/sip cup he aspirates. If he drinks from a bottle he seems to be able to manage fluids bye mouth. This is why we were able to avoid the feed tube. He prolly could have tolerated thickened fluids but hated them. Does Rhett digest slower? Tristan had 87% of stomach contents when he should have had 14% so I have to feed him small amounts more frequently and since I reduced his fluid intake per sitting to 3oz his reflux is way better. Since surgery he has been using a sip cup (like Rhett he would not take the bottle post surgery) so far so good but who knows it is silent. He will be having another swallow study in May to see if he is aspirating still. He was not diagnosed at birth but later when I attempted to switch him to a sip cup. <BR/>I am so happy they figured this out and hopefully Rhett will get back to his happy little self. Those photos broke my heart and have been imprinted on my brain over the past few days. Poor little guy. I hope you have the most peaceful sleep ever! Home sweet home!! (((HUGS)))Karihttps://www.blogger.com/profile/04214240569421989423noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-75348917423926319262008-04-11T21:30:00.000-07:002008-04-11T21:30:00.000-07:00I'm so glad to hear this good news! At least now y...I'm so glad to hear this good news! At least now you can have a good weekend at home with the family. Get some rest and take care of yourself, too.Damama Thttps://www.blogger.com/profile/00433392172815959276noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-2188509938650221362008-04-11T21:14:00.000-07:002008-04-11T21:14:00.000-07:00YAY!!!!!Oh Pam, I so glad... and so relieved. I'v...YAY!!!!!<BR/><BR/>Oh Pam, I so glad... and so relieved. I've been praying like crazy for you guys hoping they would figure out what was going on. I'm so very glad you have some answers and your sunny little miracle boy back again. We will continue to keep all of you in our prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-81379821686346652842008-04-11T20:08:00.000-07:002008-04-11T20:08:00.000-07:00http://www.parent-2-parent.comIs a very good site ...http://www.parent-2-parent.com<BR/><BR/>Is a very good site to help with tubes, dysphagia, reflux, nissen/fundo's, ect.<BR/><BR/>We haven't had to deal with dysphagia (although the pulms thought my son's oxygen needs were because he was silent aspirating, they were wrong though) there are many on this site that have and can give some good advice if needed.<BR/><BR/>good things to thicken with, things live vital stem to help ect.<BR/><BR/>Glad he's feeling better!!!<BR/><BR/>Glad your home!!!!<BR/><BR/>SarahSarahhttps://www.blogger.com/profile/15035742153838178311noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-38288605062821841252008-04-11T19:22:00.000-07:002008-04-11T19:22:00.000-07:00Yay for home! Yay for your own bed! Yay for him fe...Yay for home! Yay for your own bed! Yay for him feeling better!<BR/><BR/>I know how frustrating that NG can be, but you'll do great dealing with it for a couple months. You just vent to me if you need, been there, done that!! If you end up going the g-tube route, it'll be a relief. It was for us, even though I was totally afraid of it.<BR/><BR/>We'll keep praying. You get some sleep.RKhttps://www.blogger.com/profile/11259757888643034394noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-64533688867670252452008-04-11T19:04:00.000-07:002008-04-11T19:04:00.000-07:00Glad to see that you are home. And glad that you h...Glad to see that you are home. And glad that you have answers- sort of. Hopefully this will get you on the mend.<BR/>Great to meet you both today!!<BR/><BR/>Tami<BR/>Thatchers momSunshine Marketinghttps://www.blogger.com/profile/06821864936647891881noreply@blogger.com