tag:blogger.com,1999:blog-5520636576141846708.post8135999421964133842..comments2024-01-04T02:50:43.653-08:00Comments on RHETT'S JOURNEY: "I'm so Sorry your Son has Down Syndrome".......Unknownnoreply@blogger.comBlogger11125tag:blogger.com,1999:blog-5520636576141846708.post-25578391849618549252008-01-13T17:42:00.000-08:002008-01-13T17:42:00.000-08:00Oh, I'm so glad you commented over at my place on ...Oh, I'm so glad you commented over at my place on WW or I might never have known about your delightful blog!<BR/><BR/>I really get where you are coming from on this post. Our oldest was born with a rare birth defect and has been through 23 surgeries. Before her surgeries, she had a very large mass on the right side of her face and neck. You wouldn't believe some of the comments we've had from total strangers. Even now we get questions and comments about her scars and her asymmetrical smile (residual nerve damage following surgery). I get weary of the world's standards of perfection and I spend many hours in prayer over the day that it will begin to matter to our little girl. <BR/><BR/>Rhett is an adorable little angel and I am so glad he has such a loving mommy! I'm off to add you to my blogroll : )Lindyhttps://www.blogger.com/profile/16219485473489371544noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-23401589844477376532008-01-11T05:34:00.000-08:002008-01-11T05:34:00.000-08:00Beautifully said. Often I tell people that I would...Beautifully said. Often I tell people that I wouldn't have it any other way, too. I really think people say those things because they don't know what else to say.<BR/><BR/>Gabi's heart defect is more common among the general population. It's not usually a heart defect associated with T21. And even her baby sitter has it, but her baby sitter required 2 surgeries and Gabi only needed 1.Shannon @ Gabi's Worldhttps://www.blogger.com/profile/06489515190295297209noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-53001461911615970692008-01-10T17:39:00.000-08:002008-01-10T17:39:00.000-08:00This is an excellent post! People who don't know ...This is an excellent post! People who don't know better say some of the stupidest, insensitive things! Rhett is adorable, does he have red hair? The only place I've seen that name before is Gone With The Wind. Thanks so much for visiting my blogs, I'll be back to visit again :)Irishcodahttps://www.blogger.com/profile/14202666062612276655noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-31891739699236247232008-01-10T16:44:00.000-08:002008-01-10T16:44:00.000-08:00Ah yes, the infamous, "Oh, he doesn't have DS that...Ah yes, the infamous, "Oh, he doesn't have DS that bad, you must be so relieved!! DOH!!! <BR/><BR/>Oh, and the times I have been asked if he will ever be cured so that the DS will go away. Again, DOH!!!! <BR/><BR/>I don't want it to go away, I like him just the way he is THANKYOUVERYMUCH! :)Pamhttps://www.blogger.com/profile/10449171111666867354noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-6939057343184586312008-01-10T13:59:00.000-08:002008-01-10T13:59:00.000-08:00this is a great post. I can relate to getting anno...this is a great post. I can relate to getting annoying comments or questions. We get weird ones like this when people find out she is autistic with chromosome disorder. Believe it or not some ask if the chromosome disorder can be fixed. Many say, "wow. You would never know since she is so pretty." ugh. Since the additional chromosome disorder some say, "oh good. At least now you know it is for sure not your fault." are you kidding me? I am always shocked. Always.Marla https://www.blogger.com/profile/03926898159751613267noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-30408415284700967762008-01-10T13:17:00.000-08:002008-01-10T13:17:00.000-08:00This sounds like something I could have written!! ...This sounds like something I could have written!! My fav I have heard many times is "drum Roll" OH HE DOESN'T HAVE DOWN SYNDROME VERY BAD UGH UGH UGH Go get em girl educate advocate and then educate some more "banging head against wall is optional"Karihttps://www.blogger.com/profile/04214240569421989423noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-85360986271959192152008-01-10T12:50:00.000-08:002008-01-10T12:50:00.000-08:00Amen to that!Amen to that!Michellehttps://www.blogger.com/profile/04082807589185886275noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-24675519629324624162008-01-10T11:23:00.000-08:002008-01-10T11:23:00.000-08:00Hear yah. I could have written a great deal of thi...Hear yah. I could have written a great deal of this. Primarily what bothers me is the "I am so sorry," or the "oh, gosh...how hard for you." Um, it isn't hard at all. And Elliot, too, has medical issues so very unrelated to his Ds. Just blessed with more I suppose. Wouldn't change him for the world. And Rhett...so very perfect just being "Rhett."<BR/><BR/>Love you.Michellehttps://www.blogger.com/profile/16762718199277338901noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-41891259758770653952008-01-09T20:47:00.000-08:002008-01-09T20:47:00.000-08:00You are so awesome!You are so awesome!Sarahttps://www.blogger.com/profile/15938860988782323361noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-76000625508176454772008-01-09T19:34:00.000-08:002008-01-09T19:34:00.000-08:00Like the above comment, that was very well said. ...Like the above comment, that was very well said. I understand exactly where you are coming from. It is good for you to be able to say such things not only on Rhett's behalf but for yours as well. Way to go. Amymommy to Kaden, Brody and angel Avahttps://www.blogger.com/profile/07610063669468416297noreply@blogger.comtag:blogger.com,1999:blog-5520636576141846708.post-84600279107245797382008-01-09T17:21:00.000-08:002008-01-09T17:21:00.000-08:00Bravo, and well said! I can't applaud loudly eno...Bravo, and well said! I can't applaud loudly enough.RKhttps://www.blogger.com/profile/11259757888643034394noreply@blogger.com