Friday, January 25, 2008

Anxiety Attack, Round One.....

They just called to confirm the times for Rhett's MRI on Monday. I know it sounds so stupid to be having anxiety, and it's not a major surgery, but just the fact that he is going under general anesthesia makes the elephant on my chest crush down even harder.

It's going to be a long weekend......or maybe too short and not long enough. Either way you look at it, this sucks.

Please pray that everything goes smooth, and that I can look at this post on Monday after we are all done and laugh at myself.............

I freak out more now over the little things than I did when he had his heart surgery. Is this what they call emotional pain and suffering after a traumatic event? Ha! and I always thought people were such idiots when they talked about pain and suffering in court.......my nerves have been shot to a whole new level. What am I going to be like when they do his Nissen and we have to visit the PICU again?

GULP.......

Okay, enough whining I need to go find something productive to do.........and maybe a Clonzapam too............

14 comments:

Niksmom said...

Will be keeping you all in my thoughts and prayers. BTW, one answer to the "what will I do..." about the PICU? PLAN and be vigilant. Seriously. Talk with a hospital social worker/patient care advocate and express your fears and concerns. Ask that a special notation be made in Rhett's chart that no meds are to be given without parental witness. You have rights as his parents and one of those is to feel confident in the level of care he is receiving.

That said, I'm going to visualize that it will all be completely fine and totally "routine!" :-)

Michelle said...

Take a deep breath, sweetie. Many hugs and prayers for you, Rhett and your entire family. Be blessed! Love yah!

mom2noah said...

Just wanted to let you know that you and your family have been on my mind frequently. I continue to pray for your family especially for Andy and Rhett's upcoming surgeries. I wish I had the magical words to make all your worries/issues go away and I could just shoulder your these stress for you. Please continue to keep your faith and spirits strong as they will continue to guide you through these difficult times. Lots of love & hugs - Terry & Noah

rachel said...

Try to enjoy this weekend as much as possible! I am so sorry for what you will face in the upcoming week. Prayers coming your way!

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Frances said...

Hi, I just came across your site looking for info on pediasure and medicaid. My 14 mth old son has Down syndrome and some of Rhetts photos could have been Daniel. It blew us away with how alike they looked in some of the photos.We don't have any cardiac issues but Daniel collects specialists the way most children collect soft toys.
Praying Rhett and Andy both do really well and your trials ease.
hugs Frances
ps I would send you pictures if I knew where to send them

Shannon @ Gabi's World said...

Pam, I bet it really is PTSD related to the overdose. Hang in there!

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Emily said...

Praying for an uneventful hospital visit tomorrow. Hang in there!

carolyn q said...

Hey,
Just wanted you to know I am thinking of you and Rhett today as he goes through the MRI. I hope and pray that things go well.
Hugs,
Carolyn

Damama T said...

As I'm typing this, you are in the middle of the MRI. I'm sure that Rhett is doing great, and I'm holding his mommy very close and praying for her to be OK, too.

Can't wait to get the good news we are all praying for regarding Rhett's status.

xoxoxo Much love.

carolyn q said...

Pam,
I was worried about you guys driving to PCMC today. I ended up having to drive to SLC (2700 S) for work today and I was at the top of the Point when the storm was blowing in. I have never seen the freeways so full of snow and I prayed that I would get to my destination safely and then back to Orem was a whole other challenge. I hope you were able to get to PCMC without getting caught in the weather. I was sure thinking of you and all that is going on this week.
Hugs,
Carolyn

Childlife said...

Hi Pam - I know what you mean about worrying... it never gets easier. Particularly when you've lived through some bad hospital experiences. We've had an overdose issue and also issues with our daughter's food allergies being ignored. We have laminated signs that we put on our daughter's hospital door, above the sink in her room, on her bed, on her IV pump and on her feeding pump... "ABSOLUTELY NO MEDS, FOOD, OR BEVERAGES OTHER THAN WATER WITHOUT PARENTAL WITNESS OF ADMINISTRATION" We meet with the Attending, the Chief Resident, the Head RN, and the RN providing care upon admission and go over her medical history, our concerns, and our safeguards. We also makes sure we have spoken with the Resident, Head RN and RN providing care for each shift as soon as change of shift has completed. We also make sure that except for bathroom breaks, either my husband or I are in the room with her. I also insist on doctors and nurses thoroughly wash their hands in my presence upon entering the room and that they use a stethoscope and other medical instruments either dedicated solely to our child's use or disinfect theirs in my presence and tuck in or remove any flapping ties. I'm not popular with most of the medical staff, but my kiddo has survived 25 surgeries - that's all I care about.

Childlife said...

P.S. We had the Nissen done and I highly recommend the laproscopic version if he's a candidate (usually they say no if there has been extensive prior GI surgery.) The recovery was quicker and you tend to get more highly skilled surgeons with the laproscopic version. I don't know if it's a coincidence or not, but Jacqui had hers done at age 18 months - she's five now and it's still intact and tight. We've known several families that didn't go the laproscopic route and they've had to repeat the surgery one or more times.

Marla said...

I would worry if you did not have anxiety! It is totally understandable to have it. I know I do! In fact it is totally exhausting me. I am sure you can relate to that.