Rhett is not doing well.....

This is Rhett the day he came home from surgery.....


This was taken Sunday.....


See the difference?

The worst part is I don't know what's going on. What I do know is this. He is sleeping between 13 to 15 hours a night. As well as a 1 to 2 hour nap during the day. His oxygen saturation's are ever so slowly going down. When we were released from the hospital they were at 98% on room air. Now they are in the lower to mid 80's on room air. On one liter of oxygen he saturates at 99% which is good. I love those numbers. He is supposed to be above 95% to relax his heart and the blood vessels in his lungs. He's gone from 32 lbs down to 26 lbs.

Oh, and his heart rate? It's hovering at this number.....


That 68? That's what his heart rate is at, while he is awake. MY heart rate is higher than that.

He is also having blue spells where his hands, feet, and mouth turn blue.

I am freaking out here. We have a Dr's appointment this afternoon. We have got to figure out what is going on.

He is only interested in watching Elmo and Signing Time. I am so sick of Elmo I could puke, and when I go to sleep at night all I can hear is the Colors of the Rainbow, and the Silly Pizza songs in my head. If he isn't watching one of these movies he is so agitated. He just lays on the floor and cries.

When I am sick of the movies we sit on the floor and read books. He is really into those touch and feel books. We only have two of them, and that's all we do is feel the fuzzy and smooth and rough animals. Our days are getting very boring. I have tried to pull out different things, but there is just no interest in them.

He won't even play with his cars. It takes too much energy. I know people have asked me if he could be dehydrated, or in pain with constipation, but his stools are all fine, and he is getting his feeds through his feeding tube. He is off of his Lortab, and only on Tylenol every once and a while.

He is still drooling like crazy, thick sticky drool. He is hardly chattering at all, and dang it, I just want my baby back!!

I just don't know which Dr to begin with, and if it's the surgery that has made his health decline, I don't know how I am going to live with myself. I had hoped that we were doing the right thing.

This just sucks.