Friday, May 2, 2008

Just When You Think It's Safe To Breathe.......

You get a phone call from your caseworker telling you that now that your husband is working, you make too much money and are going to loose your son's medicaid and SSI.

We don't get insurance with Andy's job until July.

With a child that literally is using THOUSANDS of dollars a month in medical supplies and medication, July is an awfully long ways away. With a surgery scheduled in June that simply can't wait, one wonders how much more we can take.

9 comments:

my--four--sons said...

I am sorry. Have you checked into the CHIP program? You can make more money and it covers almost everything medicaid covers.

Anonymous said...

With a medically fragile child, you can speak with your caseworker about spend-down. It may be an option, anyway. Good luck!

jennie said...

i would appeal this. with how sick Rhett has been and how many surgery's will be schedule within the next month, Rhett should remain on SSI and medicaid.

Kyle, Aimee & Ava said...

Talk with someone else. With Rhett having a disability, Andy's income SHOULD NOT affect his SSI or Medicaid. He should still qualify for what's called Disability Medicaid in the state of Utah. I would try talking with a supervisor in the DWS office.

Sunny said...

Pam, I'm so sorry to hear that. We have the same frustrating issues with insurance, but haven't had nearly the medical expenses that Rhett has. I hope things work out and you can find a solution for lag in coverage. You could look into HIPPA for the month of June. It's expensive, but at least it offers some coverage. It is insurance for the uninsurable (our little kiddos with Ds) offered through Select Health. The link to it is on the Select Health website. Good Luck!

Kaden and Ava's mommy said...

Pam,
The same thing happened to us as well. I know that all states are different but Kaden is back on medicaid through a waiver. I am sure that there is some way to keep Rhett on medicaid...I am not sure about SSI (we don't get it anymore). Kaden maxed out on our insurance...oh at about 10 months of age. I would ask your caseworker to help you find some way to keep him on medicaid...there has to be a way.

I personally think they should be required to help although people make "too much" money, especially when there is no other insurance involved. But what do I know???

Take care and don't get too stressed, something will come along. (I know that is easier said then done!!)

Love,
Amy

Marla said...

Yikes. Hopefully it is a mistake??? I know my sister is on SSDI and Medicaid and they are always taking it away due to their own errors. It is a major red tape pain for her though.

We are always dendied due to income. Thankfully we have health insurance. Even still with Rhett's care the expenses have to be unbelievable. I am sending prayers this gets sorted out. It just has to. Hugs.

Childlife said...

Oh, soooo not fair! I sympathize on this woe, completely. Hang in there Pam, you're gonna make it. Lots of prayers for your family coming your way.

kristi said...

I hope things work out for you all...sometimes it just is NOT FAIR how our system is run. We get no help because of our income but I am checking into respit care.