We have been able to take Rhett off of his oxygen for a couple of hours a day now for the last week. I haven't said much since I didn't want to jinx anything, but we have had fun going outside and playing without any "strings" attached.
He has also been making strides in tolerating his feeds. He is now up to a full can of pediasure with water added over a 45 min period without refluxing most of it up. We doubled his Prevacid dose and it seems to have helped during the day. Night time is a totally different story of course, both oxygen and feed wise.
Lot's of oxygen and sloooooowwwwww feeds is the name of the game for night time. I can't complain though, he is sleeping like a champ. Something he hasn't done since his pre-heart surgery days. This is a good sleep though. Not a I'm-so-worn-out-I-can't-take-it-anymore-sleep.
Chloee is also making strides with her neck. She went to school today and was so happy to be back. I can't believe the school year is almost over. The 23rd is her Kindergarten Graduation. It's nuts.
Here is a picture I snapped of her getting her neck warmed up before PT, and seeing the chiropractor yesterday....
It's been a quite few days around here. I really like those types of days.
8 years ago