Santa

Sorry it's been a few days my sister had surgery a few weeks ago, and I have had to take over some of her care. It's the least I can do for her. She is like a second mom to my kids. On Dec. 4th we had our local Down Syndrome chapters, Christmas party. It was a lot of fun. Rhett really dosen't like Santa. Last year we were not able to go see him because Rhett was so tiny and sick. We didn't want him getting RSV, so we became hermits. This year he loves the lights and all the decorations.....as long as you keep him away from the fat man with a beard.

I really hate winter and all the colds it brings our family has been sick. It never ceases to amaze me how the colds spread through the family so fast. We are trying to get our insurance to pay for another season of the RSV shot so that Rhett dosen't get sick so much. He had it last year, and didn't get sick once...except for a couple of stomach bugs. We are keeping our fingers crossed, he is still on oxygen at night because of pulmonary hypertension, and is still having problem with a little congestion around his heart so hopefully they will give it to him. Anyways I better get going before my kids hurt each other. They are rough housing.......it's only going to get worse from here, with them being excited for christmas......oh well it wasn't too long ago that I was the same way!!