Updatde.......
Well things aren't going as well as I want them to. Rhett is still on the vent, and they have actually had to up his support. But they say with the aspiration it gets worse before it gets better. His lungs are really inflammed from the acid that was in his stomach. He is really sedated and I hate it so bad. They say once he gets off of the vent he will do really well. I hope so. I just don't want to get my hopes up. I don't know how much more dissapointment I can take.
He went down to imaging today to have an NJ tube placed, and they were able to look at his repair for his hernia, and they don't see any damage from the chest compressions so far. So there is one peice of good news. We stil are not a hundred perent sure, but time will tell.
He is so puffy, and it is so hard to sit there and watch him knowing that things didn't have to be like this. I have asked if his pulmonary hypertension would make his recovery harder, and they don't seem to think that it will. The nurse that did this to him is still up there working and it is so hard to see her everytime we walk in. We finally asked the social worker to move her to a different part of the unit so that we didn't have to see her. I think the first two days I was numb and now I am just so sad. I just don't know how to deal with it. We can't leave the hospital because we are afraid to.
They just keep talking about extubating tomorrow, and then tomorrow rolls around and they push it to the next day. This emotional roller coaster is just killing me. I don't want to get my hopes up for anything anymore, yet I am trying really hard to be positive. I know that it dosen't sound like it, but he had a blessing, and we were told that everything would be fine, and I really do belive that I know that god is going to take care of him. He is my little man and he is going to be ok. I have this huge thing called faith, and I think it is just going to take a little time for his little lungs to recover. Once again, thank you so much for all of the outreach and support that we are getting. We love each and everyone of you, and can't wait to post good news so that all of you can share in our happiniess. Thank you for all of your prayers.
9 comments:
Hugs to you & Andy. I will continue to hold Rhett in my thoughts and prayers, and have many friends doing the same. Faith is a powerful ally.
Kei, William's mommy from T21online.
Oh Pam! We are all pulling for sweet little Rhett. You're in our thoughts and prayers all day. Give that guy lots of kisses for Chelsea!
thinking and praying for you each and everyday. I am sorry your sweet boy has to go through this.. hang in there.. he will be OK!!!
hugs! amy and mayson
Lots of prayers are coming from our house for sweet Rhett. We're all with you through this, holding you up with prayer as much as possible. Please remember to take care of yourselves - Rhett is going to need you when he comes through this! Hugs to you all, Amy & Emma (T21 Online)
We are thinkning and praying for all of you!
Rhett's lungs will heal and he will come off of that vent and do amazingly well!
Hold on to the promises in that blessing.
Many hugs,
I can't wait for the good news, either. I know it's coming, and it is so kind and sweet of you to know how much we all want to hear it. You are one terrific lady.
I've been in both the NICU and the PICU and I hate them. I am not one to hate but there it is. I know how hard it is to be there and I am praying for strength for you and your family.
I'm so happy you spoke up about the nurse! That's one thing I just wouldn't be able to deal with at the moment.
Hugs, prayers, and wishing you all home soon...
Oh Pam-
I don't even know you and yet I feel I do. I have been praying so hard for Rhett. He is a strong little man and has been through so much already. You and Andy are stronger than you realize. I am happy to hear Rhett had a blessing. Keep hold of what was said and know that Heavenly Father is watching over all of you. I will continue to pray and watch for updates.
I found your blog while reading Fledge Farm. You are in our thoughts & prayers. I am not sure you have come across this blog but here is an inspirational journey of one very couageous little boy. Maybe it will help.
http://mamaslittlebug.blogspot.com/
Always have hope. God is right beside Rhett!
It's been a while since I've visited your blog and didn't know any of this was going on. Sending you strength and healing thoughts...Rhett's a strong boy and I know he'll get better soon.
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