We Have a Surgery Date Set........

Rhett goes in on the 21st of March for his UPPP surgery. We will be in the hospital for 5 to 7 days, and in the PICU for at least 3 of those days.

If Neurosurgery decides that he needs his spinal surgery done before the UPPP then this will change, but for now that is where we are headed.

We had a rough time deciding between the trach and the UPPP, but after it was explained that he would probably have to have the UPPP anyways after he got older before the trach came out, we decided to try the UPPP knowing that he may need a trach anyways. Either way there is a possibility of both situations, so it was a tough decision.

We went up to PCMC yesterday for his Upper GI, and it showed that he had moderate to severe reflux. But when we went up to meet with the surgeon, his PH Probe results still weren't anywhere to be seen. Come to find out they hadn't even been read yet. So we still don't know if he will have the Nissen or not. We are supposed to get a call today.

I was so frazzled yesterday with everyone in the hospital, they all seemed so unorganized. Rhett wasn't in the computer or on the schedule for the Upper GI, so they had to fish around for the orders, then we had to wait 20 min for them to squeeze us in.

Then I told them up front that it would be best to put the barium in through a tube, but they said they were going to try a bottle first. So they sat there and squeezed it into his mouth, it took 5 of us to hold him down, and he sat there and screamed his head off, and bathed everyone in barium. Finally they put the tube down his nose and did it that way. What the hell happened to mom knows best? I just sat there and shook my head. I wasn't going to get into the "I told you so speech."

So then we go up to the surgeon's office, and wait for another hour and a half for her to see us. I am chasing Rhett all over the hospital, because his stroller broke, so we don't have one anymore. He just kept running all over, and I was so tired of chasing him. I can't tell you how many times he fell, because he was getting out of breath and was so tired. He has a huge rug burn on his forehead and a black eye. He also has a bruise on his hip from being held down and fighting so hard to get away.

You can't tell me this kid has low muscle tone when it takes 5 people to hold down a two year old. Anyways all that waiting to find out that we can't decide to do surgery until we get the PH Probe results. Of course the Dr. hurt her leg skiing over the weekend, and had her own Dr. appointment to go to, so we get thrown out of the office, with a "Oh, I'll call you sometime tomorrow after we have the results and I know what is going on."

She didn't answer any of the questions I had or anything. She just handed me a instructional sheet on a Nissen. So now we wait. More.

I was so mad and frazzled, and upset by the time I got home. So the news that Chloee won that contest was very welcomed. It made my day a whole lot better. They called about 5 min after we walked in the door.

I sure hope our appointment with Neurosurgery goes alot better than our one with General Surgery went.