Rhett is talking like crazy. The past few weeks he has gone crazy with his words. I am just tickled that he is doing so well, and so are his therapists. Speech is his strong area, and gross and fine motor are his weaker ones. We have kind of hit a snag in his walking, which the neurosurgeon tells me is due to his tethered cord. He is still walking, but he toddles like a baby that has just learned to walk most of the time. Espescially after he has been walking for a while. He still falls down alot too.
But he IS walking, and he IS doing well all the way around. This surgery has made a huge difference in his overall health. First of all he has been able to come off of his oxygen during the day. His saturations are around 98/99. This is huge. At night he is still dipping to the 80's but his cardiologist thinks it may have to do with his heart rate dipping so low. We might start him on a medicaton to help keep his heart rate up, but we will discuss it at his cardiology appointment this month.
Here is a little video of him saying some of his best words, that you can acutally understand, and not some of his "Rhett Language." He even shows you some body parts!! You'll have to excuse the mess in the front entry way, we order our pediasure only once a month, and just got our shipment today.
After the video, be forewarned that I am posting stoma pictures, so read and look at your own risk. Sorry if I gross anyone out.
Okay, so here are the pictures of his stoma. The first one is a good one to show you how far the area of redness stretches out. It's the best I could do with the disk in the way.....once again, excuse the mess.....this time on him. I hadn't cleaned him up yet, and he's not the biggest fan of adhesive remover. I wanted to take pictures before making him mad. Good idea eh?
The second one is where it's the reddest. (Is reddest a word???) Sorry I know it's graphic, but I could really use some opinions.
Know that as hard as these are to look at he is not bothered at all. He is doing belly flops off of the chairs onto the floor, and full of spunk more than he was before his surgery. The worst thing for him is being held down for his dressing changes. They don't hurt him or anything, he just gets ticked that you aren't letting him run around like a wild man for 10 minutes of his day. :)
Also does anyone use Desitin as a barrier cream? That's what we have been using and it is working GREAT!!