Ah, it's true, home sweet home.
We actually were discharged yesterday, but you know how life is, busy and crazy. We came home to Chloee having strep. She is going to be the star of the next surgery at our house. Those darn tonsils are coming out soon. This is the second time she has had strep since school started.
Since we don't have insurance for her I have been trying to put it off, but the way things are going we keep putting money out for Dr. appointments and antibiotics, so we better just get the surgery done. Her tonsils are constantly touching her uvula, even when she isn't sick, and they have been like this for two years at least. So when they get inflamed she literally can't swallow anything without throwing it back up. Poor girl. I feel so bad, but she really hasn't had any issues with infections or anything until she started going to school so they didn't want to take them out.
Now she has finally hit enough infections that they are ready. Too bad they couldn't come to this conclusion when we had insurance for her though. Ah well, such is life in our family.
Rhett is doing really well. He is having quite a bit of swelling at the base of his back. He looks like someone stuck a tennis ball in the small of his back. He is quite bruised as well. But do you think it's slowing him down?
No Way!! Not my boy!!
He has been up and running around and jumping off of the couch. He is also dancing to Signing Time! and hopping like a frog whenever he watches hopkins. I have tried putting in a different DVD other than the Leah's Farm one, and he keeps going to his box and pulling it out. He says,
"Here ah go." then sits and waits until I put it in. This really is his favorite DVD of all time.
He is absolutely loving his big screen TV. We watched Cars on it today, and he thought that was pretty cool. I need to find our Ratatouille DVD and put that on for him. He loved that one when we saw it at the dollar theater. He doesn't get so excited when I put these movies on for him, so I can kind of keep him under control, where as with Signing Time! he goes nuts. He is loving it all so much.
I still have a ton of pictures but I am waiting to finish up the series of them by taking a picture of him with all of his stuff that he got. As soon as I do this I will email them to Make-A-Wish, and they will send me the pictures that they took as well. ( They are holding them ransom until I send the pictures of him with his TV!!) :)
I feel like I am totally not with it right now between lack of sleep and the fact that I have been going non stop for over a week.
Life is good though. Life is really good. I know we will still have some hurdles to jump, but I am so happy with the way things are going. Rhett has a very strong will, and he is going to prove every Dr. wrong that said he wouldn't make it to his teenage years. I just know it.
Even with his latest Echo, we still need to be very careful with him this winter. He still has alot of scaring in his lungs from his overdose, and they still need some time to heal. He can have all of the time he needs and I will stay indoors again this winter. I know that he will get better.
He is going to be three in a month, (My BABY will be THREE!!!) and for his birthday we are going to try and save up to get him one of those Little Tykes or Step Two slides with the little things to climb on. Something like this.
That way we can put it in our living room with his TV, and he can still run around and have fun without running the risk of getting sick from a public playground. That and he will be able to develop his gross motor skills now that his spinal cord has been released.
The Neurosurgeon told me that he should really take off. Apparently there was so much tension that he was surprised Rhett was still walking........That's my boy, Just pushes through everything without complaining. He is such a superstar.
So I promise pictures are coming, this week. Hopefully tomorrow or Wednesday. But Soon for sure.
Thank you again for all of the prayers for Rhett. We would not be where we are today without them, and all of your support for our family.
Lots of Loves,
Pam, Andy, and Family
Monday, September 1, 2008
Ah, it's true, home sweet home.