Thursday, April 10, 2008

Still No Answers......

Last night was awful. They drew labs every two hours, and man it was a long night. I keep telling him that he looks like a junkie. :)

He is still pretty down, but we met a new little friend that has Down Syndrome too!! She is cute, and is only a month younger than Rhett. She has Pulmonary Hypertension too!! (No worries Chelsea you are still his number one babe though!!!)

So we are hanging out here waiting for tests. They are going to do an echo, and maybe switch around his meds for the PH. They are also going to do a swallow study to see why he is doing such weird things when he drinks.

We haven't seen anyone from ENT, but the attending physician has said that if they can't get his breathing situation figured out that we may end up still getting a trache. I don't know if it would be during this stay or not, but we have alot of mysteries to unravel, and that will be a last resort type of thing.

I know it is on everyone's minds that this surgery has just made everything worse, including and most importantly his Pulmonary Hypertension. His heart rate is very low, but his blood pressure is good. His heart rate while he is sleeping was at 50 all night. When he wakes up it is in the 80's.

He is just hanging out in his crib watching a whole lot of Baby Signing Time. I think I can officially repeat it backwards! It's all good though, we love it and it has done so many wonderful things for him.

Anyways, I better be back to my boy. Thank you for all of the prayers. I will update when we know more.

(Oh, and Andy, this is a rated G blog, no more swearing, remember your kids are reading this, and Monkey See Monkey Do. Don't make me send you to time out!! Love You)

Pam and Rhett

13 comments:

Pam said...

Sorry Babe! It just slipped. I'll be a better monkey. Ha ha!!!

Love ya,

Rhett's Big Daddy (Andy)

Niksmom said...

Well, I do't know if it's any comfort or not but Nik's hear rate is always super, super low when he's sleeping...it used to freak the nurses out but the cardiologist told us it was "normal for Nik" and his heart is fine. (He's had a PDA ligation, open-heart ASD repair and a balloon procedure for pulmonary valve stenosis.)

Hang in there and try to get some rest, Pam!

Lisa - Lily's mommy said...

Thinking of you all and keeping sweet Rhett in our daily prayers! I sure hope you guys get some answers soon - I can only imagine how difficult this is on everyone! Keep your chin up and know that you have lots of people rooting for you!

Give Rhett lots of hugs and kisses from Lily!

Lisa and Lily (T21)

Michelle said...

so sorry he's been admitted again! Praying they'll find the answers to what is going on soon!

~Melissa~ said...

I hope you get some answers today - I'm glad he's happy watching Signing Times though and even made a new friend :)

Anonymous said...

Oh Pam, We've been thinking about you and Rhett all day. I hope you get some answers soon and your little man gets better. Hang in there and know we're praying.

Cris and Max

Kari said...

I had a busy day and finally had a chance to check in. I have been thinking about you all day and praying every chance I get. Hang in there girly. I hope you get some good answers to resolve this and a Trach won't be nessesary!!!((HUGS))

carolyn q said...

Please know your family is in my thoughts and prayers. I do hope that Rhett man gettings feeling better soon and they figure out what is going on!
I wish I could come visit you at the hospital, but I am having to stay away since I have been sick with Influenza B. BLAH!!! I will call and check up on you though :0)
Hugs,
Carolyn

Marla said...

I am so glad you are insisting on getting some answers. Sometimes it takes a tough mama to get to the bottom of things. I am so sorry for little Rhett. prayers and hugs being sent.

Kei said...

Oh Pam, I'm sorry Rhett had to be admitted. Sending lots of cyber hugs and prayers.

And do you need a bar of cyber soap for Andy's mouth? LMAO! *sorry Andy! just kidding!*

Carey said...

Oh man, I totally feel you. Maybe you can get those convenient little "tubies" put into his chest. JK We were relieved to have them though b/c it meant no more poking! Hang in there and keep us posted! So glad to hear he's not moving on to other girls!

Love you guys!

Mom to JBG said...

Good for you for standing your ground until you get some answers, as your husband said.

Sending positive thoughts to your family!

Tami Acord-Nelson said...

Hi Pam, Andy and Rhett-
We are praying for you and we are pulling for you. How exhausting. We are thinking about you.
Tami (Thatchers mom)